Help Sophie Walk

My name is Sophie......

Sophie was born 2 months premature, and was a little fighter from day one.
she swas diagnosed with cp at 18 months old, and has come on in leaps and bounds but never will be able tob learn to walk..
we moved to littlehampton from London for a better life 2 years ago and has had a wonderful time so far ,
my pregnancy with Sophie began as a straight forward affair. It was only at 20 weeks when i had my first bleed and was admitted to hospital for a scan that any concerns were raised at all. It was found that the placenta was Lowe lying , i had placenta previa grade 4.. causing my placenta to bleed often this went on for several months the last 2 months me being admitted to hospital on complete bed rest-
on 2/6/05 i had a massive hemorrhage and Sophie was born by c-section and rushed away to scbu for oxygen, she weighed 4lb 8 oz a massive weight for an early baby, she looked like a giant next to the other poorly babies but she was so much smaller then a doll, we couldn't find clothes to fit her. she was a little fighter and was out of hospital in 3 weeks , even before her due date.

Sophie was a happy baby but we noticed the mile stones not being reached very early, and as i had 2 others i new i was not being paranoid, she couldn't sit she lent to the left constant she never played with her feet and hands in the air, she just cuddled her doll hard, i was constantly on at the hospital to check for other things wrong, and at 16 months in physio they said there was nothing wrong she just defied gravity which still to this day i do not have a clue what this means. but i persisted and demanded to see a specialist, who in one hour noted Sophie had 10 visible cerebral palsy spastic diplegia signs. i was kind of relieved as i new she was not right and i new i was being fobbed off.

Sophie is a very bright, energetic 5 year old girl she He loves playing with other children at school and spending time with her brothers and sisters and cousins.
she is a little madam and very bossy but this is what gives her her own fight for life.
.Sophie then last year was diagnosed with epilepsy and thank fully its not the severe type , its more of a sleep seizure kind which is very distressing for her lasting between 45 minjs to hour long, her regular med keep her calm, most of the time.
Sophie also has painful cramping at night and when this happens she often wakes crying from the discomfort. Her physiotherapist sally vye has been wonderful and always made sure Sophie gets the equipment and care she needs.
 we have had a hard journey getting Sophie this far and unfortunately her feet are suffering her bones are twisting and she is constantly in pain with them, called equinus...

Written by Debra "mummy"